Scalp Tightness
I had surgery to remove a large meningioma. It had pushed up into my scalp and deteriorated the skull right there. They ended up using a titanium mesh in that spot since they couldn't salvage the skull...
View ArticleMeningitis
The meningioma was pressing on the right frontal lobe. I read that this could cause decrease in inhibition, increased use of profanity, increase in addictive behaviors. Will this go away with time ...
View ArticleSupplements - Post Surgery
I had a 6 cm meningioma removed in Dec 2015. I was considering taking an over the counter supplement with the hopes that it would help with my recovery. Perhaps something like krill oil, Phosphatidyl ...
View ArticlePainful scar area
Hi. My daughter is really suffering from her scar 3 months post up. She says it hurts so much and pain is unbearable. Is there a way to help with the scar she has from having a tumor removed??? Any...
View ArticleMeningioma
Hello-I had a meningioma removed in January 2015. Haven't had a follow-up mri yet, but my question is: Do other people get like a numbness/electrifying pain(like your foot is asleep) with a headache...
View ArticleScat tisse
Wouldn't an mri show if there was an infection at the incision site??? On the outside ...
View ArticleMeningioma needs to come out
A year and a half ago my husband was diagnosed with multiple meningiomas. After 4 opinions from prominent neurosurgeons, we agreed to Watch and Wait. On Monday when he had his latest 6 month MRI, we...
View ArticleMRI readings
Hi I don't know if anyone is frustrated with the radiology reports from follow up MRI. I have mri every 3months but a different radiologist reads the scans and the wording always changes. I'm nearly 2 ...
View Articlebrain tumor
I developed a brain tumor about 2.5 years ago at the same time I was exposed to black mold and other toxins, which was the result of damage left by a tropical storm., and the negligence of the...
View ArticleStopping Keppra
I recently had a left temporal craniotomy to remove a grade 1 tumor. Luckily the doctor got it all and told me I could already stop taking the Keppra as I had not had any seizures. I have slowly been ...
View Articlemy daughter
My 17 year old daughter suffered anoxic brain damage and now is unable to walk or use her hands she was denied treatment in a rehad facility,and is doing out patient read but isn't seeing any...
View ArticleDental xrays
What are you opinions on dental xrays after a brain tumor? I have been avoiding getting xrays at the dentist since I had surgery 2 years ago and the dentist wants me to get new xrays. Should I continue...
View ArticleSwelling after 2 months
Hi, I had a brain tumor removed on April 1st of 2015 and part of my skull bone is replaced by 6" titanium plate. I was recovering fine but since last 4-5 days I have swelling around my incision, which ...
View ArticleTrigeminal schwannoma tumor removal - post op recovery?
Hi. I had surgery three weeks ago to remove a trigeminal schwannoma from 5th cranial nerve. I now have numbness in my left lower face, jaw, mouth. The Dr says it may be permanent. The Physicians...
View Article3weeks since olfactory groove mingeoma surgery
I had my surgery may18 @ Pennmed in philly .was in the hospital until the21st the anti seizure Meds suck! I'm finally off the steroids amen! My question for y'all how long were you emotional & when...
View ArticleLife after Cancer
So I'm a 27 year old female who was diagnosed with a GRADE 4 Malignant brain tumor in 2006 when I was only 18 years old when I finished my first year of community college. I went from a normal 18 year ...
View ArticleCan anyone help
Hi all my son aged 9 (8 at the time of diagnosis) was diagnosed with a brain tumour December 19th 2014 it was removed on December 21st it was the size of a lemon but thankfully it was not cancerous...
View Articlepost surgery scans
My son, 33, more than likely (haven't heard directly from NO yet) has the mesenchymal subtype from looking at his molecular and genomic information. This type is usually not as responsive to radiation ...
View Articleunmethylated long term surviviors of glioblastoma
I keep asking for anyone new to this site to pass on a hopeful story of unmethylated MGMT long term survivors. Also, to possibly give other molecular and genomic info. of their particular case and any ...
View ArticleTumor gone... now what?
Hello All, Our recent mri, 2 weeks after radiation showed that the giant gbm mass is gone! Doctor said it is very unusual for SOC to do this much. We are so shocked and happy. However, my mother is in ...
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