post surgery scans
My son, 33, more than likely (haven't heard directly from NO yet) has the mesenchymal subtype from looking at his molecular and genomic information. This type is usually not as responsive to radiation ...
View Articleunmethylated long term surviviors of glioblastoma
I keep asking for anyone new to this site to pass on a hopeful story of unmethylated MGMT long term survivors. Also, to possibly give other molecular and genomic info. of their particular case and any ...
View ArticleTumor gone... now what?
Hello All, Our recent mri, 2 weeks after radiation showed that the giant gbm mass is gone! Doctor said it is very unusual for SOC to do this much. We are so shocked and happy. However, my mother is in ...
View ArticlePain
Hey I've gone through three brain surgeries now. It's been about two years first. Does anyone else still experience continued pain ? I as others I'm sure have extensive pins and plates to hold skull in...
View ArticleJust have a question to ask, maybe someone has experienced the same...
I'm almost two years out since I had my surgery. They removed a mango sized tumor, grade 3 ependymoma (sp). I've been doing great, all my scans and blood work come back perfect. So here's my question ...
View Articleany thoughts
My husband is 57 yrs old. He was diagnosed Aug. 2014. He has had two surgeries and has been through chemo and radiation. He has GBM stage 4. His first surgery went well and he was fine after the...
View ArticleAcoustic Neuroma
Hi there, I was 'diagnosed' in 2009 with a tiny 2mm and did watch & wait. My spouse left me right after the diagnosis (how nice!) and over the next several years there was steady growth, so I...
View ArticleGBM - MRI shows that tumour has gone!!!!!
Hello to all the beautiful souls on this site. I just wanted to share/update some very happy news with you and to get some of your valued opinions. Husband 47 years young had gbm surgery left side, 4.3...
View Articleafter tumor removal
Hi everyone, I had a 3 cm brain tumor removed last month. It had mets from my lung..adenocarcinoma. Anyway, I know its early in recovery, but this surgery really was a walk in the park compared to my ...
View ArticleSWEATS!!!!!
Since my tumor removal about 5 weeks ago I have a problem with sweating PROFUSELY!! My tumor was in the back on the left side...mets from lung cancer. All I can find in research is that it can be a...
View ArticleGBM Grade 4 Struggling after Radiation
Hi all. First thank you all for sharing your experiences. This site has been a great resource for me and my family. I wanted to share our situation with the hope that someone out that has had a similar...
View ArticleDepression post brain surgery
I am a week post brain surgery to remove a large Meningioma off my left occipital lobe. Recovery is slow. Dealing with depression now. Have any of you had to deal with depression post surgery and if so...
View ArticleNeck issues post brain surgery.
Hello everyone. I am curious how many of you out there who underwent brain surgery ended up having neck issues post surgery? My Meningioma was removed September 16,2015. It was on my left occipital...
View ArticleConvulsions
My son, Phil, has a clean MRI, but has been experiencing pseudo seizures and tingling, numbness in his left arm and foot. His tumor was in the right frontal, parietal lobe, and has weakened his left...
View ArticleGrade II Oligodendroglioma
When do you think the seizures will stop. I am on 2000 mg every 12 hours post 5 months surgery and I still get what they are calling focal seizures. The surgery was my upper left sided front lobe and ...
View Articleupdate - NO TUMOUR ON LATEST MRI
Hello again all. Jas's latest MRI yesterday stated "no evidence of residual mass lesion. No evidence of recurrence. No other lesions noted either"! The doctor/professor who we saw specialises in GBM...
View ArticlePostoperative infection
Hello friends! What a week I have had. I was re-hospitalized the past Friday with a Pseumdomoans incisional infection. I had emergency surgery on Saturday morning to re-open incision and clean out...
View ArticleInfection in brain--immune system cure
Am I dreaming or did someone post that their person had an infection in their head and the resultant immune response either killed or reduced their tumor ...
View ArticleProblems with taste post craniotomy
Im a 34 year old femalse diagnosed with a large (6.5 cm) left frontal lobe tumor and had a full craniotomy with removal of what I believed 100% of a benign meningioma in July 2015. After a few months ...
View ArticleA Long Road Ahead
I'm preparing to travel from Florida to Houston, Tx for surgery to remove my Pineal Cyst/Tumor. After living with headaches so long and other dibilitating symptoms I'm praying this is the way to...
View ArticleNewly diagnosed with brain tumor
Hi! I'm having a 2 cm tumor removed that is in between my frontal and temporal lobes (hopefully, if it can be cut out completely) and I'm wondering what the recovery is like? In July, I had a 9 level ...
View ArticleGBM and Occupational Therapy
Hi everyone! My name is Leanna and I am an occupational therapy student. I am hoping to gather some insight for a project in my neurological rehabilitation course. I was wondering if any of you or your...
View ArticlePineal Tumor Surgery
I know we have at least a couple of other folks here who've had surgery for pineal tumor. Can you tell me how long you were off work for that? Also, how long did side effects from radiation and/or...
View ArticleDeficits after surgery and having surgery after radio/chemo, any advice?
Hi guys I have been reading everyone’s posts daily for around 8 months now but this is my first post. I gain a lot of hope and inspiration from everyone’s stories but also a lot of sadness and fear for...
View ArticleUpcoming upper left frontal lobe meningioma resection
Having recovered nicely from posterior fossa resection eight weeks ago I am scheduled for resection of the mass located in the upper left frontal lobe. If anyone has had experience with a tumor in this...
View Article
