brain fog
these symptoms i'm having i'm not sure if they are related to my 3rd brain surgery to remove a pxa in my right temporal.. the drs ive seen, think its related but.. i'm not positive & its driving me...
View ArticleBrain tumor removal/craniotomy recovery.
I'm able to find more information on months post op but not so much immediately when you're in recovery. What are the first few hours/days like? What happens during your hospital stay before you go...
View ArticlePlate shifting?
2days ago my incision area was pretty smooth, but today my head is feeling bumpy.. I know the plates can shift, but it creepy that it has happened so quickly.. It seems like I can feel them & it's...
View ArticleFollow-up MRIs
Hello, Has anyone had to go for yearly follow-up MRIs after surgery? My doctor said I would need to do this but I don't know if I have to go back to the same facility or if I have to make an...
View Articlelots of questions
i have a few questions, i'm going to talk with my dr about most of them..but just curious what you guys think.. i had surgery 2 months ago, pxa, right temporal, started temodar 2 weeks ago 1. ive asked...
View ArticleSevere Head Pain
Has any one who has had surgery or caring for someone who has had severe head pain? Yesterday my son had for about 20 seconds severe head pain, 9 on the pain scale. It occurred on the side of his head ...
View ArticleRight frontal lobe benign meningioma
I am one year post op from having my benign tumour removed. (January 2014) I still experience headaches at times and my right eyebrow has swollen somewhat. This happened in June this year. My eyesight ...
View ArticleImpact of tedious stressful work on recovery
Has anyone else who has successfully gone back to work after tumor resection and treatment had issues with your employers? Or have you noticed changes in your recovery progress if your job involves...
View ArticleStop and Smell the Roses
I am on the board of directors for the National Alliance on Mental Illness - Kansas City (NAMI-KC). We are having a major fundraiser this Saturday which I assumed that I would not be able to attend...
View ArticleRegrowth only after 7 months! !!!!!!
Hi everyone, my husband went for second craniotomy for GBM4 last Wednesday. We had the standard treatment (RADIO /CHEMO, 5 MONTHS OF TEMODAL 5/23) now only after 7 months, anything didn't work and he ...
View ArticlePost surg complication and picc-line
My husband has GBM and had craniotomy sep 29,2014. He had an excellent and quick recovery. That was followed by radiation/temodal - no terrible side effects. Had his first round of temodal 5/23...
View ArticleAnxiety
I had an awake craniotomy a year and a half ago for a ganglioglioma and have had clear mris since, I just recently developed bad anxiety, I'm under a lot of stress with school but I was curious if this...
View ArticleSome side effects we are unsure about
Hello. My father 72, was diagnosed in November with late stage glioblastoma in his parietal and Occital lobes. He had a craniotomy, and finished two weeks ago a six week regiment temodar and radiation ...
View ArticleExtreme Fatigue almost a year after last surger
I was diagnosed with a pair of grade 2 Oligoastrocytomas in May of 2012. Since then, I have had three resecting surgeries and as of now, the Neurosurgeon thinks it is all gone, for now. My last surgery...
View ArticleTingling sensation on wrong side after surgery.
I had a resection surgery in June 2012 to remove a tumor from near the motor strip on the right side of my brain. As soon as I woke up from that surgery, I had an unusual sensation on the entire right ...
View ArticleScalp Tightness
I had surgery to remove a large meningioma. It had pushed up into my scalp and deteriorated the skull right there. They ended up using a titanium mesh in that spot since they couldn't salvage the skull...
View ArticleMeningitis
The meningioma was pressing on the right frontal lobe. I read that this could cause decrease in inhibition, increased use of profanity, increase in addictive behaviors. Will this go away with time ...
View ArticleSupplements - Post Surgery
I had a 6 cm meningioma removed in Dec 2015. I was considering taking an over the counter supplement with the hopes that it would help with my recovery. Perhaps something like krill oil, Phosphatidyl ...
View ArticlePainful scar area
Hi. My daughter is really suffering from her scar 3 months post up. She says it hurts so much and pain is unbearable. Is there a way to help with the scar she has from having a tumor removed??? Any...
View ArticleMeningioma
Hello-I had a meningioma removed in January 2015. Haven't had a follow-up mri yet, but my question is: Do other people get like a numbness/electrifying pain(like your foot is asleep) with a headache...
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